Big Brother’s Reggie Bird shares heartbreaking photos of son Lucas battling cystic fibrosis

Big Brother winner Reggie Bird shares heartbreaking photos of son Lucas battling cystic fibrosis – and says they are ‘taking each day as it comes’ By Kristy Johnson For Daily Mail Australia Published: 15:26 BST, 30 May 2021 | Updated: 15:26 BST, 30 May 2021 Reggie Bird shared heartbreaking photos of her son Lucas’ cystic … Read more

Twin left fighting for his life with cystic fibrosis has finally got £28,000 drug that will save him

A sigh, or a yawn. A great, big, chest-expanding, lungs-full- to-burst gulp of air.  The simple pleasure of taking a deep, satisfying breath is something most of us would find fairly unremarkable. For Anthony Usher, however, doing so represents something near miraculous.  The 31-year-old from Liverpool has cystic fibrosis, an incurable genetic condition that destroys … Read more

Thousands of patients in England will benefit from a ‘transformational’ cystic fibrosis drug

Thousands of patients in England will benefit from a ‘transformational’ cystic fibrosis drug now available on the NHS Kaftrio is a ‘triple combination therapy’ which helps improve lung function It will help those with cystic fibrosis, a hereditary disease, to breathe more easily NHS patients will be some of the first in Europe to be prescribed … Read more

BARNEY CALMAN: Cystic fibrosis sufferers finally get ‘wonder drug’ after endless talks

Dare we dream? Amid the flurry of tweets in response to our articles over the past fortnight that predicted the Government would soon strike a deal for a lifesaving cystic fibrosis drug, this simple sentence stood out.  It summed up the hopes – and fears – of thousands of British families blighted by this horrible … Read more

Miracle cystic fibrosis drug which has been dubbed the ‘holy grail’ could be free on NHS next month

When Nicole Adams says ‘it’s great to be alive’, it’s impossible not to smile. From just about anyone else, it would be a pleasant, if fairly unremarkable platitude. But coming from the 28-year-old Belfast native, it is simply joyous. For it’s no exaggeration to say that, just six months ago, Nicole’s life hung in the … Read more

Girl, four, with life-limiting cystic fibrosis gets a ‘wonder drug’ in time for Christmas

A four-year-old with cystic fibrosis has received the Christmas gift of her dreams – a wonder drug for her crippling condition.  Ayda Louden’s family, from Carlisle, Cumbria, spent years calling for NHS access to Orkambi. It was finally approved in October. The schoolgirl got her first delivery of the life-changing drug, which should extend her life … Read more

Tennessee boy, six, with cystic fibrosis beats coronavirus

‘I’m a cystic fibrosis warrior, and I beat COVID-19.’   That’s what one six-year-old Tennessee boy said after beating the odds and making a full recovery from the novel coronavirus that has plagued the world.  Joseph Bostrain suffers from cystic fibrosis, a disease that causes the body to produce thick and sticky mucus that can clog … Read more

Tennessee boy, six, with cystic fibrosis beats coronavirus

‘I’m a cystic fibrosis warrior, and I beat COVID-19.’   That’s what one six-year-old Tennessee boy said after beating the odds and making a full recovery from the novel coronavirus that has plagued the world.  Joseph Bostrain suffers from cystic fibrosis, a disease that causes the body to produce thick and sticky mucus that can clog … Read more

‘Please don’t let us die’: Three cystic fibrosis sufferers beg the NHS to fund ‘wonder drug’

It’s been hailed as a wonder drug with the potential to extend the lives of thousands of people with cystic fibrosis.    But patients across the UK still can’t get their hands on Orkambi – despite it being a year since Theresa May promised to take action. The drug, which slows lung deterioration, received its European … Read more