Fears for ‘missing’ Instagram model Jessica Stein after she stopped posting a year ago

Concerns are growing for a trailblazing Australian Instagram model who vanished from social media without a trace more than a year ago.

Jessica Stein, 38, was once a popular travel and fashion blogger, known for uploading idyllic photos of herself exploring the world in designer clothing.

She used to work with major international brands, and is widely regarded as one of the first influencers to make a living from sponsored posts.

So when Jessica suddenly stopped posting in January last year, her fans were understandably concerned and looking for answers. 

‘We miss you… hope you’re okay’: Concerns are growing for trailblazing Australian Instagram model Jessica Stein, who vanished from social media without a trace more than a year ago

Prior to her disappearance, Jessica, who goes by the online pseudonym Tuula Vintage, had been keeping fans updated on her three-year-old daughter Rumi’s battle with a chromosome disorder. 

The little girl was diagnosed with Mosaic Trisomy 2, with Maternal Uni Parental Disomy 2 – an extremely rare disorder which has been diagnosed just 10 times.   

Since her departure from Instagram, Jessica’s last post has been flooded with comments from followers begging to know if she and her family are okay. 

Health: Before her disappearance, Jessica, also known as Tuula Vintage, had been keeping fans updated on her three-year-old daughter Rumi's battle with a chromosome disorder

Health: Before her disappearance, Jessica, also known as Tuula Vintage, had been keeping fans updated on her three-year-old daughter Rumi’s battle with a chromosome disorder

Rare: The little girl was diagnosed with Mosaic Trisomy 2, with Maternal Uni Parental Disomy 2 - an extremely rare disorder which has been diagnosed just 10 times

 Rare: The little girl was diagnosed with Mosaic Trisomy 2, with Maternal Uni Parental Disomy 2 – an extremely rare disorder which has been diagnosed just 10 times

'Hope everything is okay': Since her departure from Instagram, Jessica's last post has been flooded with comments from followers begging to know if she and her family are okay

‘Hope everything is okay’: Since her departure from Instagram, Jessica’s last post has been flooded with comments from followers begging to know if she and her family are okay

‘How is your daughter going? I noticed you haven’t posted anything on Instagram in a long time and I hope she and you are doing well,’ one wrote.

‘Everything okay?’ another asked.  

After Jessica welcomed Rumi with her partner, Patrick Cooper, in 2017, fans began noticing the once-prolific social media user was posting less frequently.

Other priorities: After Jessica welcomed Rumi with her partner, Patrick Cooper (left), in 2017, fans began noticing the once-prolific social media user was posting less frequently

Other priorities: After Jessica welcomed Rumi with her partner, Patrick Cooper (left), in 2017, fans began noticing the once-prolific social media user was posting less frequently

Wanderlust: Jessica boasts 2.2 million Instagram followers and was once considered one of the world's most influential travel and fashion bloggers

Wanderlust: Jessica boasts 2.2 million Instagram followers and was once considered one of the world’s most influential travel and fashion bloggers 

Jessica last posted about Rumi in July 2019, when she uploaded photos of the pair cuddling on the couch at a luxury hotel in Shoal Bay, New South Wales.

‘This year has been a blur. One of our biggest hopes for 2019 was to spend as much time at home as possible, but we’ve somehow spent nearly five months of it living in hospital,’ she wrote. 

Jessica then spent another five months off social media, before returning on January 5, 2020, to share an impassioned post about the Australian bushfires. 

What is Mosaic Trisomy 2? 

Trisomy 2 mosaicism is a rare chromosome disorder characterised by having an extra copy of chromosome 2 in a proportion of a person’s cells.  

In infants born with trisomy 2 mosaicism, signs and symptoms vary widely.

The severity and specific symptoms present depend on the level of mosaicism (the proportion of cells affected).

What is Uni Parental Disomy?

Uniparental disomy (UPD) occurs when a person receives two copies of a chromosome, or of part of a chromosome, from one parent and no copy from the other parent.

Reported symptoms  

  1. A flattened appearance in the middle part of the face
  2. Abnormally set eyes 
  3. Intellectual disability 
  4. Heart defects  
  5. Deafness  
  6. Twisted intestines  
  7. Growth and motor delay 
  8. Physical asymmetry in the body and face  

She has not posted on social media since.

Jessica suffered a rocky pregnancy due to complications from an injury she received after being hit by a car as a teenager.

Announcing her pregnancy on Instagram at seven months, Jessica revealed: ‘I experienced multiple pelvic and internal injuries after being hit by a car at 16 with ongoing pain and limitations, and was warned of what might never come to be.’ 

Last sighting: Jessica last posted about Rumi in July 2019, when she uploaded photos of the pair cuddling on the couch at a luxury hotel in Shoal Bay, New South Wales

Last sighting: Jessica last posted about Rumi in July 2019, when she uploaded photos of the pair cuddling on the couch at a luxury hotel in Shoal Bay, New South Wales

'I experienced multiple pelvic and internal injuries': Jessica suffered a rocky pregnancy due to complications from an injury she received after being hit by a car as a teenager

‘I experienced multiple pelvic and internal injuries’: Jessica suffered a rocky pregnancy due to complications from an injury she received after being hit by a car as a teenager

‘I’ve always wanted to adopt (as my incredible mum was) and my partner and I had been talking about it again just before this unexpected miracle happened,’ she added.

Jessica also revealed she’d suffered serious complications at 20 weeks when her water broke early as a result of her bladder injury from the crash.  

‘I don’t know the words to describe how hopeless I felt… not being able to control my own body, provide for my baby or see hope that we would make it through,’ she wrote.

'I don't know the words to describe how hopeless I felt': Jessica also revealed she'd suffered serious complications at 20 weeks when her water broke early as a result of her bladder injury from the crash

‘I don’t know the words to describe how hopeless I felt’: Jessica also revealed she’d suffered serious complications at 20 weeks when her water broke early as a result of her bladder injury from the crash

Struggles: Jessica said that while her partner was a 'rock of support and positivity', she had found the last few months the 'loneliest' of her life

Struggles: Jessica said that while her partner was a ‘rock of support and positivity’, she had found the last few months the ‘loneliest’ of her life

Jessica added that while her partner was a ‘rock of support and positivity’, she had found the last few months the ‘loneliest’ of her life.

In October 2017, Jessica and Patrick launched a GoFundMe page titled ‘Our Little Warrior Rumi’ to raise money for Rumi’s medical treatments.

The page, which has since been disabled, raised $235,804 in donations.

Helping hand: In October 2017, Jessica and Patrick launched a GoFundMe page titled 'Our Little Warrior Rumi' to raise money for Rumi's medical treatments

Helping hand: In October 2017, Jessica and Patrick launched a GoFundMe page titled ‘Our Little Warrior Rumi’ to raise money for Rumi’s medical treatments